A life worth living

Reality check: I will need a kidney transplant.  If that doesn't put things into perspective, what will?  Honestly, I live with that truth every day of my life and it doesn't stop the petty, insignificant things from creeping their way into my psyche and ruining my day.  A snide comment, a spilled drink, a stormy day can spoil my mood much faster than thinking about my giant, failing kidneys.  

The fact is, I have lived with polycystic kidney disease every day for the last eleven years, and will continue to live with it every day until I take my last breath.  To me, PKD is as normal as long legs or freckles are to someone else.

Why am I even blogging about this?  Something I always prefer to keep private?  Because if I am able to have children some day and happen to pass this disease on to them, and there is a 50% chance I will, I want them to be able to know what it was like for me.  I want them to have first hand knowledge of what they may go through.  I don't want them to feel alone and helpless like I have sometimes felt...but if they do, I want them to know it's okay.  But most importantly, I want them to know that PKD is not that bad.   I want them to know that even though life isn't always easy or fun or fair, God has a purpose for their life.  I want them to know that all God's creatures are wonderfully and perfectly made, and in His eyes (and mine) they are as perfect as their amazingly healthy sibling, best friend or loved one. 

So anyway, that is the whole point of this blog.  To record my thoughts and feelings on life and living, so my imaginary children and also my less than perfect memory will remember what it was like to be me at 27, 28, 29, 30....and so on.

Up next in PKD Adventures...making my first ever appointment with the transplant center.